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Little Miss Road Rage
06-01-2008, 04:46 PM
Posted for anybody who might like to sign this ME petition. As some of u know this is what I suffer from and I can deffo say its not in my head. The only good thing about ME is I know who my mates are now and I prob wouldn't have a Leggie if I wasn't ill. The deadline for signatures is 22/1/08.

Click here:

http://petitions.pm.gov.uk/ME-is-real

'We the undersigned petition the Prime Minister to get the Health Service and medical profession to accept the WHO classification of ME/CFS as an organic neurological disorder and not as a psychosocial syndrome.'

The governments website lists petitions in order of how many signatures they accumulate. The ME-is-real petition currently stands around 27th place out of 8478 petitions lodged on the site.

Thanks
Kelly
peter thomson
06-01-2008, 05:24 PM
Just signed it Kelly
Kieran
06-01-2008, 05:53 PM
Yeah, someone in Alex's family suffers with this. Signed.
Little Miss Road Rage
06-01-2008, 06:39 PM
thankyou
Physician
06-01-2008, 06:43 PM
Dun-d-it :happy:
HMG1K
06-01-2008, 06:48 PM
Me too.
ANTHONY
06-01-2008, 06:55 PM
all done and dusted here too
thecustomer
06-01-2008, 07:47 PM
signed
thanks for posting about it

I lost (only) 6 months to ME in my 20s; relearning how to live & work was the only way back from spending most days indoors.

Hope you'r erecovering ok

Will
Beastlee
07-01-2008, 07:45 AM
Have signed but from experience the petitions bit is just PR for the PM. They never take action and always give you some excuse.

We haven't lived in a democracy for many years!
Little Miss Road Rage
07-01-2008, 08:31 AM
Thanks everyone.

Will I'm doing better than I was a month or so ago. I was housebound and it was awful. At least I can go out now.
Turbo_Steve
07-01-2008, 08:14 PM
You poor poor thing.
Don't let it beat you: I know it can take years to build yourself up to going out again, and working, and even then you have to budget yourself in terms of energy.

How anyone can think it's psychological is beyond me: you can SEE how tired an ME sufferer gets, even when they are trying to hide it!
Spirit
07-01-2008, 08:23 PM
Just signed it too. Good to hear you are a little better Kelly
Little Miss Road Rage
08-01-2008, 10:29 AM
You poor poor thing.
Don't let it beat you: I know it can take years to build yourself up to going out again, and working, and even then you have to budget yourself in terms of energy.

How anyone can think it's psychological is beyond me: you can SEE how tired an ME sufferer gets, even when they are trying to hide it!


Damn I didn't realise people knew I was hiding it lol. Yeah my mates know now if I say I'm fine when I'm not and they take me home lol.


Thanks everyone